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SUPPORT GROUPS AND PARENT ORGANIZATIONS
The Parent Resource Center provides this list as a service and does not endorse any specific group.
Please email pamala.spiering@lcps.org with changes or additions to this list.
 
 
ADHD
CHADD (CHILDREN & ADULTS WITH ATTENTION-DEFICIT/HYPERACTIVITY DISORDER) OF NORTHERN VIRGINIA
703-641-5451
NOVACHADD@hotmail.com
Loudoun Chapter:
The Loudoun County parent support group will be meeting the 4TH SUNDAY of every month at 3:00 pm at the  KinderCare Learning Center at Ashburn Village - 44051 Ashburn Village Plaza.  For more information contact CHADD.NOVA.LOUDOUN@gmail.com.
 
ADOPTION
FACES OF VIRGINIA FAMILIES-LOUDOUN ADOPTIVE/FOSTER FAMILY SUPPORT GROUP 
a local support network that addresses the challenging and changing needs of foster, adoptive and kinship families.
Contact Lisa mathey at 703-347-5049 or
mathey88@yahoo.com  www.facesofvirginia.org
 
ALLERGIES
LOUDOUN ALLERGY NETWORK
"A group of parents and members of the Loudoun community, committed to support, educate and bring food and other anaphylacitc allergy awareness to the Loudoun County community as well as advocate for families living with this hidden disability.  Monthly meetings are announce via a private, members-only forum and email newsletter. Please see our website for membership application.  Membership is free."
Thanita Glancey
Chairperson
Loudoun Allergy Network
571-989-3LAN (3526)
Disclaimer: Loudoun Allergy Network (LAN) is not a professional or medical organization. It is a group of parents sharing information and supporting each other. Information distributed from LAN does not constitute medical or legal advice. Always discuss individual health questions and medical issues with a qualified physician.

 
AUTISM
ASPERGER SYNDROME
Contact-Pam Escobar at 703-430-3519
second Tuesday at 7:30, except July and Aug
Meeting in the Cascades Market Place area of Sterling
Call or email for further information
  
AUTISM SOCIETY OF AMERICA NORTHERN VIRGINIA CHAPTER
703-495-8444
 
AUTISM Monthly discussion group in Loudoun
A program of the Arc of Loudoun for parents of autistic children
703-777-1939
 
AUTISM KEY
parent run website with message board
 
AUTISM NETWORK FOR DIETARY INTERVENTIONS
Established by parents
 
PARENTS OF AUTISTIC CHILDREN (POAC)
Mission to improve lives of children by providing scientifically-based training to parents and professionals
 
PARENTS OF AUTISTIC CHILDREN NORTHERN VIRGINIA (POAC-NoVA)
703-391-2251
 
POTOMAC STATION AUTISM SUPPORT GROUP
Meets first Friday of the month from 9-11 at the Potomac Station Clubhouse.
 
WESTERN LOUDOUN AUTISM NETWORK
Meeting at the Purcellville Library
Contact:  Kedal Flynn  kendalflynn@hotmail.com
703-727-3111

LOUDOUN SOCIAL SKILLS GROUP  "Parents Wanting More for Their Kids"
Joe Koroade joejkor2@aol.com
 
BIPOLAR DISORDER
LOUDOUN MOOD AND ANXIEY DISORDER SUPPORT GROUP such as (but not limited to) Pediatric Bipolar Disorder
Meeting Monthly
Louise Hancock davlouise@aol.com
703-728-7981
 
BRAIN INJURY
BRAIN INJURY SUPPORT GROUP
Anna Bradford-703-776-2295
First Saturday at Fairfax Hospital
 
BRAIN INJURY SUPPORT GROUP: REBUILD FAMILIES
703-451-8881
  
CANCER
PARENTS OF CHILDREN WITH CANCER
Telephone support-Sarah Singer-703-960-1100 ext. 231
 
AMERICAN CHILDHOOD CANCER ASS.
 network of parent support groups.
 
CHROMOSOME DISORDERS
CHROMOSOME DELETION OUTREACH
Trisomy 18, 13 and related disorders
800-716-7638
 
CHROMOSOME 18 DELETION
 
UNIQUE
Information, mutual support and self-help for families of children with any rare chromosome disorder
 
CEREBRAL PALSY
PARENTS OF CHILDREN WITH CEREBRAL PALSY
Melissa Curry 703-402-3324
 
CLEFT LIP AND CLEFT PALATE
 
 
NORTHERN VIRGINIA RESOURCE CENTER FOR DEAF AND HARD OF HEARING PERSONS
703-352-9055   TTY 352-9056
 
Northern Virginia Chapter
Name
Bonnie O'Leary
Title
Chapter Contact
 
Springfield VA
Phone
703-354-4557
Email
 
DOWN SYNDROME
DOWN SYNDROME ASSOCIATION OF NORTHERN VIRGINIA
Heather Trammel-703-621-7129
 
EPILEPSY FOUNDATION
800-332-1000
EPILEGSY FOUNDATION OF VIRGINIA NORTHERN VA REGION
PO Box 3843
Reston, VA 20195
Dana Douglas 703-391-1787
 
FETAL ALCOHOL SYNDROME
Northern Virginia Chapter of the National Organization for Fetal Alcohol Syndrome (NOFASVA)
Jennifer Goudy, Executive Director
NOFAS-VA holds monthly support group meetings at the Reston Library on Bowman Towne Dr.  All are welcome.
 
 
GRIEF AND HARDSHIP DUE TO DEATH AND ILLNESS
Mondays, February 25-March 18, 7-8 pm
Childcare provided
This is a support group for adults and parents of young children and/or youth who are experiencing hardship,
grief, denial, anger, loneliness and guilt because of death or illness. Gather in a non-judgemental
environment to find hope and encouragement.
Led by Chris Soong, widower and father of two young children, and Molly Riedel Nurse Psychotherapist.
 
Contacts: Molly Riedel  or Lisa Korhnak
 
Location:  ARcola United Methodist Church, 24757 Evergreen Mill Rd., Dulles VA. 20166
 
 
LEARNING DISABILITY
INTERNATIONAL  DYSLEXIA SOCIETY: WASHINGTON AREA BRANCH
703-827-9019
 
LEARNING DISABILITIES ASSOCIATION OF VIRGINIA (LDAV)
Justine Maloney-793-243-9100
 
LYME DISEASE
Loudoun Chapter of the National Capitol Disease Association -Support Group
Meetings held the last Sunday of the month from 3-5pm
Cornwall Medical Building -First Floor Community Meeting Room
224D Cornwall Street
Leesburg, VA

Contact: Carol DuPuis  703-443-9375
Email:  lymeaide4you@aol.com
 
MENTAL ILLNESS
  
THE CHILD AND ADOLESCENT BIPOLAR FOUNDATION (CABF)
parent Web-based organization
 
NATIONAL ALLIANCE FOR THE MENTALLY ILL
self-help, support and advocacy
800-950-6264
 
 
NATIONAL ALLIANCE FOR THE MENTALLY ILL:  LOUDOUN CHAPTER
703-444-5326
 
FRIENDS OF LOUDOUN COUNTY MENTAL HEALTH
703-443-1380
 
INTELLECTUAL DISABILITY
ARC OF NORTHERN VIRGINIA
Cindy Daniels-703-532-3214 ext. 215
 
The Arc of Loudoun - Paxton Campus
703-777-1939
www.paxtoncampus.org
 
OCD
Cindi Else- Loudoun OCD/Tourette Support Group
703-779-5656
Tammi Marcoullier- Pandas Support
703-724-0246  tmarcoullier@aol.com
 
PANDAS:  When Strep causes OCD and other neuropsychological issues in children)
P.A.N.D.A.S. Network  (Support Group)
http://pandasnetwork.org/2012/03/nih-issues-press-release/

Tammi Marcoullier
703-724-0246  tmarcoullier@aol.com
 
SPEECH
NORTHERN VIRGINIA CUED SPEECH
 
NATIONAL STUTTERING ASSOCIATION
800-937-8888
 
SELECTIVE MUTISM
Amy Copeland
 
TOURETTE SYNDROME
Tourette Syndrome Association of Greater Washington
Jennifer Heinz - 410-867-1151 office
Northern Virginia Support Group contact - Nancy Chaves at nancy.chaves@gmail.com. Meets bi-monthly at Fair Oaks Hospital. Visit website for updated group information.

VISUAL IMPAIRMENT
LOUDOUN PARENT SUPPORT GROUP
Melissa Browning - visionparentgroup@gmail.com
703-216-5881
 
NATIONAL ASSOCIATION FOR PARENTS OF CHILDREN WITH VISUAL IMPAIRMENTS (NAPVI)
800-562-6265
 
CHILD'S HOPE FOR SIGHT:  VIRGINIA CHAPTER OF THE ASSOCIATION FOR THE VISUALLY IMPAIRED
Dawn Peifer-804-939-1624
 
 
 
GENERAL/CROSS DISABILITY
 
LOUDOUN ENDEPENDENCE CENTER
Monthly peer support group meetings for anyone whose life is touched by a disability, a family member, or caretaker. 
www.ecnv.org/LEND/lend.html
44 121 Harry Byrd Highway, Suite 240, Ashburn
571-291-9550
 
COUNCIL FOR EXCEPTIONAL CHILDREN (CEC)
703-620-3660
 
EXCEPTIONAL FAMILY MEMBER NETWORK (EFMP)
For military families with family member with special needs
Anna Keating (Ft. Belvoir contact) 703-805-2967
 
MCLEAN BIBLE CHURCH
Parent support groups, respite and other services
Jackie Fernald, Director of Access-703-770-2942
 
NATIONAL DISSEMINATION CENTER FOR CHILDREN WITH DISABILITIES (NICHCY)
800-695-0285